I recently watched the movie Luca, a movie about identity and how we often hide that identity from the world. Warning there are spoilers in this post so if you haven’t seen it, go watch it and then come back. I’m not going to get into the details of the story but basically the story is about a young sea monster named Luca who lives in the ocean near a town in Italy. He befriends another sea monster named Alberto, and discovers that on land they can transform to look like normal humans. They have adventures in a town that hates and fears sea monsters which forces them to constantly be on guard against someone discovering what they truly are.
At the climax of the story, Luca reveals his true self to the townspeople. In that scene, two old women reveal they are also sea monsters to the town as well. What struck me about this moment was that throughout the movie, we see these two old ladies walking around town living their lives. No one in town knew the truth about their identity. I realized that they had lived their entire lives in hiding, never letting anyone know who they were. A crucial part of their identity was hidden from the world, which caused them to live in isolation while being surrounded by people. They looked human, but they were not. To reveal who they truly were would most likely have resulted in death. They spent their entire lives in fear and hiding.
I was diagnosed autistic last year, along with Lupus, a chronic autoimmune disease. While undiagnosed I also have ADHD. After a lifetime of feeling like I didn’t belong to the world I lived in I finally understood why. It was like Loki discovering that he was actually a frost giant or if I had been raised human only to discover that I was actually a sea monster or from another planet. I say this because when I learned that I was autistic so many things about myself made sense, I realized that the labels I had lived under were wrong. I was able to make adjustments to how I lived my life and work with who I am instead of wasting time trying to be “normal”.
Now that I have discovered the truth about myself, I have a choice. I can leave my fidgets, headphones and sensory friendly clothes at home and walk out the door pretending to be just another healthy neurotypical. I can avoid posting things on social media about autism, Lupus or ADHD. Or I can be honest about who and I am and live my life. Openly. Honestly. Authentically.
I don’t want to be like those old ladies, I don’t want to live in hiding.
So I posted my diagnoses on my profile pages, I began to share my story both in my personal life and my professional life. I am a teacher and every time I see a student’s head lift a little higher when they see me being openly autistic, openly ADHD, openly living with an autoimmune disease it gives me the courage to try and share a little bit more. Every time I see a parent realize that their child will be okay after meeting me and hearing my story I am convinced that the more I share, the more people I can bring hope to. Because my life is not only about me (philosophy #4).
Whatever you are going though, there are probably at least three other people dealing with the same thing. When you are open about who you are and what your struggles are you give others courage to do the same. You put yourself in a position to spread hope to a world in desperate search of it.
Alright friends it’s time for your next adventure,
I’ll miss you